By Pat Welter

Holly Griffin expressed, “Going for a run on the trail near Pullen Park in Raleigh is my favorite part of the day. I look forward to starting my day with a run as soon as I wake up.”

After her divorce, Griffin’s affection for running developed rather unexpectedly. With a full-time job and a need for a way to unwind, she found solace in running.

Griffin stated that it was her method of obtaining a beneficial exercise, releasing some energy, and almost serving as her form of therapy.

For Griffin, running holds personal significance, but it has evolved into something greater than just her own experience.

Griffin stated that NF will not hinder their progress, as they have proven to themselves.

Griffin has a genetic disorder known as neurofibromatosis (NF), which results in the growth of tumors on nerve tissue.

Griffin explained that before having children, her NF was relatively mild. However, she noted that during puberty or pregnancy, it can often exacerbate the condition. This was the case for her.

Griffin has numerous tiny growths scattered across her neck, torso, back, and other areas of her body. These can cause physical discomfort, but the emotional impact can be even more severe.

“It has been challenging for me to feel confident in my appearance, especially as a woman,” stated Griffin. “This is especially true during the summer when I wear tank tops or my running attire.”

Griffin has adapted to her condition and has even come to accept it. Her teenage son, Hayes, has also learned to cope with a more severe side effect of NF. His left tibia is bowed just above his ankle, resulting in his foot pointing downwards.

Griffin stated that as soon as their child reached ten months of age, they were placed in a brace to prevent any potential leg injuries. At the age of four, their leg broke for the first time and this continued to occur approximately every two years.

At the age of ten, Hayes broke his leg for the final time. After enduring multiple surgeries, Hayes and his family ultimately chose to amputate his lower leg.

Griffin praised his bravery, stating that he would have been traumatized in the same situation. However, he had a positive attitude and understood that undergoing the experience would ultimately improve his quality of life and allow him to engage in more activities.

Following a successful surgical procedure, Hayes was able to regain his ability to walk with the help of a prosthetic. He has now even taken up playing basketball. Hayes has become the main motivation for Griffin’s running.

Griffin stated that he wanted to demonstrate to Hayes that they are capable of tackling difficult tasks. He also believed that with determination, anything is achievable.

In 2016, Griffin began participating in NF walks to support the Children’s Tumor Foundation. In 2018, she completed her first half marathon.

Griffin stated that he has been motivated to increase his running and physical activity.

She recently participated in the Chicago marathon and successfully finished the New York City marathon in November. Griffin has collected approximately $30,000 for the Children’s Tumor Foundation and is still working towards her goal.

“I am aware that the funds I have raised will hopefully contribute towards research and finding a cure,” stated Griffin. “Although it may not occur during my lifetime, I hope it happens in Hayes’ lifetime.”

Source: wralsportsfan.com